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Showing posts from September, 2019

When the lightbulb dims. . .

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This week is Mitochondrial Disease Awareness week. Even though the awareness week is only seven days, Mitochondrial Disease is something me and many others with this devastating disease think about and deal with on a daily basis. Every person with this disease is impacted differently but I want to paint a picture for you of what my life is like with Mito. Imagine walking outside and getting progressively more and more tired until you just have to sit down to rest in order to regain your energy. While this can be frustrating, I am lucky that it only takes about a 30 second rest to regain my energy.  Imagine having to look at the ground constantly for uneven surfaces because you know there can be tripping hazards and your vision is impaired so you have to be extra careful. This has become second nature for me and the people who I am with often will warn me of something coming up that I may not see.  Imagine answering the phone at work and the person on the other end c